Building Your HIV Care Team

Managing HIV well usually isn't a one-person job. It involves a team of providers working together to support your physical and emotional health. Knowing who's who can help you get the most out of your care.

HIV Specialist / Infectious Disease Doctor

This is often the central figure in your HIV care. HIV specialists (sometimes infectious disease doctors, sometimes primary care doctors with HIV expertise) manage your antiretroviral therapy, monitor your labs, and guide decisions about your treatment plan over time. If you don't currently have a provider experienced in HIV care, ask your current provider for a referral.

Primary Care Provider

If your HIV specialist doesn't also serve as your primary care doctor, you'll likely have a separate primary care provider for general health needs, things like blood pressure, cholesterol, vaccinations, and preventive screenings. Good communication between your primary care provider and HIV specialist helps keep your overall care coordinated.

Pharmacist

Your pharmacist plays a bigger role than many people realize. They can help you understand how to take your medication correctly, flag potential interactions with other drugs or supplements, and often serve as an accessible resource for quick questions between doctor visits.

Case Manager

Many HIV clinics offer case management services. A case manager can help you navigate insurance, connect with financial assistance programs, coordinate appointments, and link you to other resources like housing, food, or transportation support if needed.

Mental Health Provider

Adjusting to an HIV diagnosis, dealing with stigma, or simply managing a chronic condition can affect emotional wellbeing. A therapist or counselor, ideally one with experience supporting people with HIV, can be a valuable part of your team. See the Mental Health & Substance Abuse category for more on this topic.

Other Specialists as Needed

Depending on your health, you might also work with:

• An OB-GYN for reproductive or pregnancy-related care

• A cardiologist or other specialist if you develop related health conditions

• A nutritionist or dietitian for guidance on diet and weight management

• A social worker for broader support services

Building Your Team Over Time

You don't need every piece of this team in place on day one. Many people start with just an HIV specialist and add other providers as needs arise. What matters most is having providers you trust, who communicate well with each other, and who make you feel heard.

Key Takeaways

• Your HIV care team often includes an HIV specialist, primary care provider, pharmacist, and case manager at minimum.

• Mental health support is a valuable and often underused part of comprehensive HIV care.

• Additional specialists can be added as your specific health needs evolve.

• Your care team should grow with you. It doesn't need to be complete right away.